{"id":2776,"date":"2025-07-24T14:47:52","date_gmt":"2025-07-24T14:47:52","guid":{"rendered":"https:\/\/www.hopeatheart.org\/nuestros-programas\/apoyo-a-las-celulas-falciformes\/"},"modified":"2025-09-30T17:11:32","modified_gmt":"2025-09-30T17:11:32","slug":"apoyo-a-las-celulas-falciformes","status":"publish","type":"page","link":"https:\/\/www.hopeatheart.org\/es\/nuestros-programas\/apoyo-a-las-celulas-falciformes\/","title":{"rendered":"Apoyo a las c\u00e9lulas falciformes"},"content":{"rendered":"

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Apoyo a las Familias Anemia Falciforme<\/h1>\n

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Un vac\u00edo cr\u00edtico en el apoyo: ahora se est\u00e1 cubriendo<\/h2>\n

La enfermedad de c\u00e9lulas falciformes (ECF) es una enfermedad de por vida, dolorosa y a menudo invisible. Aunque UT Health San Antonio ofrece una atenci\u00f3n m\u00e9dica excepcional, las familias se enfrentan a importantes retos no m\u00e9dicos que amenazan la estabilidad, la esperanza y la curaci\u00f3n. Hasta ahora, ninguna organizaci\u00f3n sin \u00e1nimo de lucro de nuestra regi\u00f3n se centraba en apoyar a las familias con ECF. Estamos cambiando eso, con tu ayuda <\/p>\n

Solicitar ayuda<\/a>
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Demograf\u00eda y necesidad local<\/h2>\n

\u00bfPor qu\u00e9 San Antonio? \u00bfPor qu\u00e9 ahora? <\/p>\n

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M\u00e1s de 2 millones de personas viven en el condado de Bexar, y San Antonio representa m\u00e1s de 1,5 millones de ese total.<\/p>\n<\/div>\n

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El 28% son menores de 18 a\u00f1os,<\/span> una poblaci\u00f3n clave con riesgo de complicaciones drepanoc\u00edticas pedi\u00e1tricas.<\/p>\n<\/div>\n

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En Texas, aproximadamente uno de cada 2.000 reci\u00e9n nacidos tiene la enfermedad de c\u00e9lulas falciformes.<\/p>\n<\/div>\n

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Datos nacionales: 1 de cada 365<\/span> nacimientos de afroamericanos y 1 de cada 16.300<\/span> nacimientos de hispanos provocan una ECF.<\/p>\n<\/div>\n

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A qu\u00e9 se enfrentan las familias<\/h2>\n

Estos retos pueden hacer que las familias se sientan abrumadas, sin apoyo,
\ny solas. Estamos aqu\u00ed para cambiar eso. <\/p>\n<\/div>\n

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Acceso limitado a la atenci\u00f3n especializada<\/h4>\n<\/div>\n

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Luchas emocionales y de salud mental<\/h4>\n<\/div>\n

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Dificultades econ\u00f3micas y bajas laborales<\/h4>\n<\/div>\n

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Barreras de transporte y alojamiento<\/h4>\n<\/div>\n

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Brechas en la atenci\u00f3n pedi\u00e1trica a adultos<\/h4>\n<\/div>\n

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Estigma social y aislamiento<\/h4>\n<\/div>\n

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Nuestros servicios de apoyo<\/h2>\n

Estamos aqu\u00ed para ayudar de forma que las familias se sientan menos solas.<\/p>\n<\/div>\n

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Ayuda financiera de emergencia<\/h4>\n

Ayuda para el alquiler, los servicios p\u00fablicos, los comestibles y los viajes.<\/p>\n<\/div>\n

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Salud mental y asesoramiento<\/h4>\n

Asesoramiento para cuidadores, hermanos y pacientes.<\/p>\n<\/div>\n

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Comunidad de apoyo y grupos de iguales<\/h4>\n

Actos familiares, actividades curativas, espacios de apoyo.<\/p>\n<\/div>\n

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Actividades creativas de bienestar<\/h4>\n

Programas art\u00edsticos, l\u00fadicos y juveniles culturalmente relevantes.<\/p>\n<\/div>\n

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Programas integrados<\/h2>\n

Apoyo para cada etapa.<\/p>\n

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El camino de la bendici\u00f3n<\/h4>\n

Atenci\u00f3n de acogida para las familias reci\u00e9n diagnosticadas<\/p>\n<\/div>\n

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El camino del cielo<\/h4>\n

Apoyo compasivo en el duelo tras una p\u00e9rdida.<\/p>\n<\/div>\n

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El camino del superviviente<\/h4>\n

Apoyo durante la supervivencia y la recuperaci\u00f3n.<\/p>\n<\/div>\n

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Con el respaldo de la experiencia m\u00e9dica<\/h2>\n

Nuestro socio cl\u00ednico UT Health San Antonio. Nuestra colaboraci\u00f3n con el
\nSouth Texas Comprehensive Sickle Cell and Thalassemia Program (Programa Integral de Anemia Falciforme y Talasemia del Sur de Texas) en UT
\nHealth San Antonio garantiza que las familias tambi\u00e9n reciban la mejor atenci\u00f3n m\u00e9dica de su clase
\n, incluyendo: <\/p>\n